Newsletter from the Sierra Madre #79

click here for the homepage Serendipitous Connections: A boy with CMT muscular atrophy – same as me by David Werner Three years ago, in 2013, I received an urgent email from a mother in Guadalajara, asking me if I knew anything about Charcot-Marie-Tooth syndrome. She told me her son, Tomás – born in July, 2003 — had been diagnosed with “CMT,” a progressive neurological condition beginning in early childhood. At birth he’d seemed normal. But hadn’t begun to walk until he was two-years-seven-months old. When he finally started walking, he had a strange wobbly gait with poor balance and … Continue reading Newsletter from the Sierra Madre #79